Pregnancy and Infant Loss Awareness

I don’t generally get involved with the various “awareness” months. However, there is one that is very dear to my heart. October 15th is Pregnancy and Infant Loss Remembrance Day. Fifteen years ago, Matt and I lost our first baby girl to Turner syndrome. She was born still at 21 weeks gestation. The list of my friends and family who have had pregnancy or infant loss is very long. All of you are in my thoughts and prayers today. If you have someone in your life who has had or is going through this trial, hug them and tell them you love them. Don’t spout platitudes. Just be there for them. They need your love and support. No matter how long it’s been, they have not forgotten the pain. Talking with them about it will not cause them more pain. They will be grateful that someone remembers their little ones. Our babies are gone, but never forgotten.

Here is my story. I pray Bethanne’s short life will be an encouragement to you.

Fourteen years ago, on February 25th, Matt and I were waiting with great excitement for our big ultrasound. I was 20 weeks pregnant and had just started wearing maternity clothes, even though I didn’t really need them yet. We had our VHS tape in hand and couldn’t wait to find out if this was a little girl or boy.

When they started the ultrasound, I knew the tech wasn’t allowed to tell us anything good or bad, except the gender. So, I waited and watched. I knew from friends that they would measure the limbs, get a good look at the internal organs, and other body parts. We listened to the heartbeat. Then the tech excused herself. I began to worry a little bit. My OB had told me that we would talk about the results at my next visit. If there was anything that needed watching she’d call, and if anything was badly wrong she’d meet us there in the room.

The tech came back with the doc that oversaw the radiology lab. They turned the screen and whispered and pointed. The doc agreed with whatever the tech had seen and told us that our OB would be there in a few minutes. They left so I could get dressed. I told Matt something was wrong. This was not good. I called my dad on my cellphone and asked him to pray. I sat on Matt’s lap with tears in my eyes as we waited for the OB.

She came in a few minutes later. She sat down and told us that our baby girl had Turner syndrome. That it was terminal, and that she would advise termination. I looked at her in shock. How did this happen? She assured us that it wasn’t our fault. That it just happens some times. Two days later, at the appointment with the specialist, we found out that our daughter’s heart had stopped in the womb.

On March 1, 2002, my OB started my induction. As I changed clothes into a hospital gown, I cried out to God, “Dear God, I do not want to be here.” Let me tell you, when you are only 21 weeks pregnant, your body does NOT want to go into labor. Hours and hours passed. Nothing seemed to be happening. Physically it hurt, but the worst of the pain was emotional. My parents and Matt were with me through all of it. I know it was hard for them to watch and pray. There was nothing anyone could do for me. Finally, after 28 hours of labor, Bethanne Grace Miller was born on Saturday, March 2, 2002 at 11:08 am. It was a very bittersweet moment.

I got to hold my sweet baby girl. It was so precious. It hurt so much. I was exhausted both physically and emotionally. She was so very tiny. No bigger than a baby doll. I could see that her eyebrows looked like Matt’s. Her little mouth looked like mine. It was joy and agony.

Today when we go to her grave and put some beautiful tulips there to remember, I am sad as I always am this time of year, but I rejoice knowing that I will see her again.

Then I saw a new heaven and a new earth; for the first heaven and the first earth passed away, and there is no longer any sea. And I saw the holy city, Jerusalem, coming down out of heaven from God made ready as a bride adorned for her husband. And I heard a loud voice from the throne, saying, ” Behold, the tabernacle of God is among men, and He will dwell among them, and He will wipe away every tear from their eyes; and there will no longer be any death; there will no longer be any mourning, or crying, or pain; the first things have passed away.” Revelation 21:1-4 (NAS)

7 thoughts on “Pregnancy and Infant Loss Awareness

  1. sedgegrass says:

    Thank you for sharing such a personal story. I would add to your suggested response, to avoid saying ‘you can always try again’. After our first child was born, God carried us through 3 miscarriages and the ‘again’ never happened after the third miscarriage (at 13 weeks). We were even chided by one well meaning Christian , who was unaware of our sorrows, that we were wrong to have our only child, remain an only child. However, those trials brought home, more than anything in our young lives, the reality and comfort of knowing that God is a covenant God and that He is sovereign and gracious.

  2. reformedsinger says:

    I’m so very sorry for your loss, Rachel. I have two little grandbabies waiting in heaven . . . my daughter and daughter-in-law both suffered losses the same year, within just a few months of each other. And no, you don’t ever forget. But it is such a relief and a blessing to know that we will see those lost loved ones some day.

  3. cachterk4jc says:

    Rachel,
    This is a most beautiful sharing of a most difficult day. Thank you for sharing your heart and your story…and your faith. I am upholding you today as you remember sweet Bethanne. May God grant you peace and grace – May He uphold you and comfort you and your family. You are such a wonderful mamma. I am blessed by you and the tender way you care for other young mammas too and the way you let your light shine even in sad and difficult times. Love to you!

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